The randomized, double blind study phase III.b of the Comprehensive assessment of the musculoskeletal health in children with cystic fibrosis – on the search for means of improvement

2024-517886-18-00 Protocol COAM-CFD-01 Therapeutic confirmatory (Phase III) Ongoing, recruiting

Start 2 Oct 2024 · Status Ongoing, recruiting · 1 EU/EEA countries · 1 sites · Protocol COAM-CFD-01

Overview

Sponsor-declared trial summary

Phase Therapeutic confirmatory (Phase III)
Status Ongoing, recruiting
Participants planned 64
Countries 1
Sites 1

Cystic fibrosis and problems with bone metabolism, bone density, skeletal muscle force

The goal of this study is to assess whether 6000 IU of cholecalciferol per day given over two years to children with cystic fibrosis is superior to 1000 IU of cholecalciferol in normalizing their bone metabolism parameters and in improving their bone density and skeletal muscle force.

Key facts

Sponsor
Fakultni Nemocnice V Motole
Participant type
Pediatric, Patients
Age range
0-17 years
Gender
Male and Female
Therapeutic area
Diseases [C] - Musculoskeletal Diseases [C05], Diseases [C] - Respiratory Tract Diseases [C08]
Trial duration
2 Oct 2024 → ongoing
Decision date (initial)
2024-10-02
Transition trial
Yes
Low-intervention
Yes
Rare-disease indication
No
Vulnerable population
No

External identifiers

EU CT number
2024-517886-18-00
EudraCT number
2022-002330-13

Trial design

CTIS Part I — objectives, methods, condition coding

Main objective

Scope: Dose response, Prophylaxis

The goal of this study is to assess whether 6000 IU of cholecalciferol per day given over two years to children with cystic fibrosis is superior to 1000 IU of cholecalciferol in normalizing their bone metabolism parameters and in improving their bone density and skeletal muscle force.

Conditions and MedDRA coding

Cystic fibrosis and problems with bone metabolism, bone density, skeletal muscle force

Eligibility criteria

Principal inclusion / exclusion criteria as submitted by sponsor

Inclusion criteria 4

  1. Diagnosis of cystic fibrosis
  2. Age from 6 to 16 (included) years
  3. Willingness of the parent or legal representative to sign the informed consent and allow the child participate in the study
  4. Woman of childbearing potential need to comply with adequate contraception methods per CTFG guideline

Exclusion criteria 8

  1. Contraindication done by SmPC of Vigantol
  2. Lung transplantation (done or planned)
  3. Bisphosphonate treatment in the last 18 months
  4. Disease other than CF with known impact on bone metabolism (based on consultancy with main investigator)
  5. Hypersensitivity to the IMP or additive substance (as per SmPC)
  6. Hypercalcaemia
  7. Renal osteodystrophy with hyperphosphatemia
  8. Pregnancy

Endpoints

Primary and secondary outcome measures (English text)

Primary endpoints 3

  1. Serum concentrations of 25-OH vitamin D and parathormone at visits V3-V7
  2. Lumbar Spine aBMD at visit V7
  3. Dynamic muscle force and power at visit V7

Investigational products

Investigational medicinal products (IMPs), comparators, placebo, auxiliary

Test 1

Vigantol 0,5 mg/ml perorální kapky, roztok

PRD7579007 · Product

Active substance
Colecalciferol
Pharmaceutical form
ORAL DROPS, SOLUTION
Route of administration
ORAL
Max daily dose
6000 IU international unit(s)
Max total dose
6000 IOU international opacity unit(s)
Max treatment duration
24 Month(s)
Authorisation status
Authorised
ATC code
A11CC05 — COLECALCIFEROL
Marketing authorisation
86/1140/93-C
MA holder
P&G HEALTH GERMANY GMBH
MA country
Czech Republic
Paediatric formulation
No
Orphan designation
No
Modified vs. Marketing Authorisation
No

Sponsors and contacts

Sponsor organisations, regulatory contacts, third parties

Fakultni Nemocnice V Motole

3 Total trials 1 Recruiting
Academic / Non-commercial
Sponsor organisation
Fakultni Nemocnice V Motole
Address
V Uvalu 84/1, Motol Motol
City
Prague
Postcode
150 00
Country
Czechia

Scientific contact point

Organisation
Fakultni Nemocnice V Motole
Contact name
Principal Investigator

Public contact point

Organisation
Fakultni Nemocnice V Motole
Contact name
The Clinical Trials Department

Locations

1 EU/EEA country · 1 investigational sites

By country

CountryMS statusPlanned subjectsSites
Czechia Ongoing, recruiting 64 1
Rest of world 0

Investigational sites

Czechia

1 site · Ongoing, recruiting
Fakultni Nemocnice V Motole
Pediatric Clinic, V Uvalu 84/1, Motol, Prague

Country notifications

Trial-start, recruitment-start, end and early-termination notifications submitted per Member State

Country Trial startTrial end Recruitment startRecruitment end Early termination
Czechia 2024-10-02 2024-10-02

Results and documents

Annex IV summary of results, Annex V layperson summary, and all documents registered in CTIS for this trial

Documents 11 files

Public protocol annexes, IB summaries, regulatory submissions and post-authorisation documents registered in CTIS.

TypeTitleVersion
Protocol (for publication) Protocol_COAM-CFD-01_ver2_13JUN2023 2
Recruitment arrangements (for publication) COAM-CFD-01 - Sablona 1 cj_aj_final 1
Subject information and informed consent form (for publication) L1_SIS and ICF_CZ_COAM-CFD-01_ICF_Pac12-14let_v1 1
Subject information and informed consent form (for publication) L1_SIS and ICF_CZ_COAM-CFD-01_ICF_Pac12-14let_v1_redacted 1
Subject information and informed consent form (for publication) L1_SIS and ICF_CZ_COAM-CFD-01_ICF_Pac15-17let_v1 1
Subject information and informed consent form (for publication) L1_SIS and ICF_CZ_COAM-CFD-01_ICF_Pac15-17let_v1_redacted 1
Subject information and informed consent form (for publication) L1_SIS and ICF_CZ_COAM-CFD-01_ICF_Pac18letavice_v1 1
Subject information and informed consent form (for publication) L1_SIS and ICF_CZ_COAM-CFD-01_ICF_Pac18letavice_v1_redacted 1
Subject information and informed consent form (for publication) L1_SIS and ICF_CZ_COAM-CFD-01_ICF_ZakonnyZastupce_v1 1
Subject information and informed consent form (for publication) L1_SIS and ICF_CZ_COAM-CFD-01_ICF_ZakonnyZastupce_v1_redacted 1
Summary of Product Characteristics (SmPC) (for publication) SPC_ vigantol 1

Application history

1 submissions — initial application plus substantial / non-substantial modifications

#TypeCodeSubmittedReference MSConclusionDecision date
1 INITIAL IN 2024-09-06 Czechia Acceptable with conditions
2024-10-02
2024-10-02